Web-based survey of resources for treatment and long-term follow-up for children with brain tumors in developing countries


Qaddoumi I., ÜNAL E. , Diez B., Kebudi R., Quintana Y., Bouffet E., ...More

CHILDS NERVOUS SYSTEM, vol.27, no.11, pp.1957-1961, 2011 (Journal Indexed in SCI) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 27 Issue: 11
  • Publication Date: 2011
  • Doi Number: 10.1007/s00381-011-1479-9
  • Title of Journal : CHILDS NERVOUS SYSTEM
  • Page Numbers: pp.1957-1961
  • Keywords: Children, CNS tumors, Developing countries, Late effects, CHILDHOOD-CANCER SURVIVOR, LOW-INCOME, MEDULLOBLASTOMA, CHEMOTHERAPY, MALIGNANCIES, OUTCOMES, PROGRAM, GLIOMAS, MATTERS, PLACE

Abstract

INTRODUCTION: Information about pediatric survivors of brain tumors in developing countries is scant. PURPOSE: In this study, we aimed to investigate the availability of resources for treatment and long-term follow-up of children with central nervous system tumors in developing countries. MATERIALS AND METHODS: A web-based questionnaire on available services and follow-up of brain tumor survivors was posted at www.cure4kids.org , and registered users were invited to participate. RESULTS: A total of 140 evaluable responses from developing countries (n = 103) and high-income countries (n = 37) were obtained. There was a significant correlation between gross national income and the availability of services for treatment and follow-up and between patient load and the availability of some services. CONCLUSION: The resources for treatment and long-term follow-up of children with brain tumors need to be improved in developing countries. PMID:21584746[PubMed - indexed for MEDLINE]
Introduction Information about pediatric survivors of brain tumors in developing countries is scant.